Kara Swanson's Brain Injury Blog

May 18, 2018

Getting Up For The Royal Wedding

Filed under: Uncategorized — karaswanson @ 12:39 pm

I saw some people post on FB that they couldn’t understand why anyone cares about the royal wedding.  They thought it ridiculous that anyone in the U.S. here would set their alarms for the 4:30 am coverage on a perfectly good Saturday morning.

I don’t mind being ridiculous.  :))

I’m getting up tomorrow morning for the royal wedding because, in part, time just keeps flying.  With a brain injury, most of us try so hard to create routines to help us stay efficient.  I know I do.

But, unfortunately, routines often keep us from enjoying any fun.  We structure our days with such rigid borders that our years continue to fly by without anything to show for them or any way to slow them down.

I believe that we slow down years when we are able to mark them as different, somehow.  When we add in a bunch of fun days and dates and adventures that keep each year from looking so much like the one before.

I’m 53 now and I cannot tell you where 47 went or what happened when I was 51.  Too many years seem like the same thing without much to mark them as unique.  As I get older, I’m recognizing an urgency to place my mark on these years so that I can recall them, differentiate them and look back to enjoy them.

I was a teen when Prince Charles married Princess Diana.  We were on vacation and my Mom and I got up early for the coverage while my dad and brothers slept.  Together we enjoyed a mother/daughter special moment that still warms me, especially now that she has been gone for 20 years.

These injuries of ours are so isolating.  It is both our burden and our opportunity to fight the loneliness and to balance the need for structure with the need for spontaneity.  The need to remind ourselves that we are still living.  That we are in the game!

Tomorrow morning won’t be a trip to the Bahamas or anything extravagant.    I won’t post pics of my morning on FB.  Trust me, nobody wants to see me in my pajamas.

But I’ll make some eggs and toast and hash browns and fresh coffee.  I’ll enjoy the pomp and circumstance of the royal wedding and get filled and thrilled with the wonderful, romantic feeling of the people there.  I will celebrate with them.

There are so many bad things on the news these days that we can get sodden with dismal.  I embrace, then, the kind of celebration that the royal wedding affords.  People cheering and dancing in the streets of Windsor.  All the extraordinary stories and history and, of course, the gorgeous women’s hats.  🙂

We all need to chase the good, wherever we can find it.

Just a reminder that we are alive, you guys.  🙂  We have to keep finding fun and making fun and enjoying ourselves, however that looks.  Why else would we have survived then?  Why bother having gone through so much if there isn’t good and light and fun and new for all of us?

We deserve it.

Wishing you all a little bit of ridiculous.  :))))  Love you.



  1. I am also planning to watch the wedding, although here in Sweden it is at 12 noon, which is a bit easier to manage. Thank you for sharing about your TBI, I find it helpful. Here’s to beautiful wedding coverage!

    Comment by Delores Berg — May 18, 2018 @ 12:51 pm | Reply

    • Hi, Delores! All my Grandparents were from Sweden. :))))) Love you, already. Hope you enjoyed the wedding. I enjoyed every bit of it. Best to you. Kara

      Comment by karaswanson — May 19, 2018 @ 10:43 am | Reply

  2. Morning Kara!
    Well, I will record the wedding and I am sure a FEW highlights will be put out over the airways. We are off to camp and I am SO enthused! I do feel Harry and Meg would be OK with this! 🙂
    For the wedding of William and Catherine, I did have a Facebook Tea Party! Of course, I have my own Catherine with a ‘C’ and Katie with a ‘K’… so I felt as though this was warranted and needed. I had people send me photos of their own tablescapes of tea party finery. It was silly and fun and well, made me think of my own dear Kate.

    Hugs from Moosee and Me 🙂

    Comment by Barb — May 18, 2018 @ 1:37 pm | Reply

    • Hi, Barb! Love the idea of your FB tea party for Wills and Kate. I was up at 4:30 this morning and the whole event delighted. Great pageantry, romance and fun. :))

      Comment by karaswanson — May 19, 2018 @ 10:41 am | Reply

  3. Awesome, and that captures exactly how life after a TBI. Enjoy life to the fullest 😃 find the special. Thank you.

    Comment by GAYLE — May 18, 2018 @ 1:52 pm | Reply

    • No. Thank YOU, Gayle. Big smiles here. :))) Kara

      Comment by karaswanson — May 19, 2018 @ 10:38 am | Reply

  4. I have a general question that over the past few has made its need to inquire apparent. How can one let others know that at one point in time you were smart, could carry on a conversation without word and name searching. Am struggling mightily with being asked if I’m sure of my facts. Bah!

    Comment by Sandy — June 2, 2018 @ 8:55 pm | Reply

    • HI, Sandy. This is a great question. I think we all struggle, wanting people to know that “we were great once!”. Most of us fear we’ve lost credibility. All I know is to know yourself and your injury entirely well. When you are overloaded and your mind is shutting down on you, tell people. Teach them. When I’m clear, I’m clear. When I’m tired, I start missing words and struggling to explain. That’s when I state to people, “Brain injury” and they’ve learned it along the way. If I am with new people and they are talking a mile a minute, I tell them, “Hey, I have a brain injury and it’s hard to follow a fast conversation. Can you guys slow it down a little?” I prove that I am still smart because I do my business and my activities with others when I am rested and comfortable. Then we are sharp as ever. When we become fatigued or overwhelmed, that’s when the wheels come off the bus a little. I state that, too. I use terms like too much stimuli and I am cognitively fatigued. Always teaching the injury. I never put myself down or describe myself in unkind ways. You ARE smart. You may say to them, “I can tell I’m becoming cognitively fatigued. Better go home now so I can have some quiet time.” Don’t expect people to “get it” because they aren’t injured. But they can “learn you” and they will come to recognize how smart you are :)))) Kara

      Comment by karaswanson — June 3, 2018 @ 7:57 am | Reply

      • Thanks Kara

        Comment by Sandy — June 3, 2018 @ 1:16 pm

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